Archives: News

How can the recent EU Court of Justice ruling regarding the definition of personal data facilitate research involving pseudonymized data?

  December 11, 2025

Access to health data is essential to all research. This is especially the case in fields where data has historically […]

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Patient co-creation in STRONG-AYA: Perspectives from a patient advocate

  November 6, 2025

Tomaž Deželak, member of our Patient Advisory Board (PAB) and Youth Cancer Europe patient advocate, works with STRONG-AYA researchers on […]

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STRONG-AYA General Assembly in Paris

  October 8, 2025

This week, the STRONG-AYA consortium gathered in Paris for a two-day General Assembly, hosted by project partner Institut Gustave Roussy, […]

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First STRONG AYA newsletter

  September 9, 2025

Our first STRONG AYA newsletter is out! In this edition, you will learn about STRONG AYA’s latest achievements, developments in […]

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AYA Care in Japan

  September 1, 2025

STRONG-AYA presented at AYA congress in Tokyo Two STRONGAYA members had the privilege to travel to Tokyo, Japan in May […]

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Two project achievements this week: Full Infrastructure Connectivity and Largest Dataset Integration to Date

  August 14, 2025

This week, the STRONG-AYA consortium celebrates two important steps, marking great progress in both the technical development of our pan-European […]

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Building trust in health data management: Master’s thesis highlights STRONG-AYA’s leading role

  July 31, 2025

Flor Pasturino, master’s student from the Higher School of Studies “Ferdinando Rossi”, has recently completed her thesis that shines a […]

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Two new datasets successfully connected to STRONG-AYA infrastructure

  July 18, 2025

Following the first STRONG-AYA federation run at the start of this month, the STRONG-AYA infrastructure continues to expand quickly. Yesterday, […]

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STRONG-AYA is now on Bluesky!

  

Follow us to stay updated on latest project news and results: ‪@strong-aya.bsky.social‬ See you there!

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First dataset goes live at the University of Manchester: Successful end-to-end STRONG-AYA federation run

  July 3, 2025

The STRONG‑AYA teams at the University of Manchester and University of Maastricht have reached a major project milestone: retrospective data from more than 5,500 […]

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