Ethics and Governance

STRONG AYA is guided by the most up-to-date scholarship on data security and ethics. We are crafting a governance model and legal framework, business architecture and quality assurance processes to ensure that the STRONG-AYA national ecosystems and the pan-European ecosystem have been designed in a way to empower patients to monitor their outcomes, create transparency of outcomes within the ecosystem and ensure long-term sustainability of the ecosystems to support European/national/regional/local cancer policy organisations to build appropriate AYA cancer services, which are not widely available at present.

Advisory Boards

STRONG AYA is guided and advised by external experts and stakeholders to ensure excellence and transparency. Our advisory boards are: