STRONG-AYA is a new, interdisciplinary, multi-stakeholder European network to improve healthcare services, research and outcomes for adolescents and young Adults (AYA) with cancer, defined as individuals aged 15-39 years at cancer diagnosis.
AYAs with cancer form a unique group; they face age-specific issues (e.g. infertility, unemployment, financial problems) and decreased quality of life due to cancer and its treatment. Unlike dedicated healthcare and trials for pediatric cancer patients, AYA-specific healthcare services are scarce and vary across Europe.
STRONG AYA seeks set up a value-based healthcare research ecosystem, with AYA patient involvement at its core, in order to develop data-driven, interactive policy and visualization tools that bring, in co-creation with all stakeholders including patients, novel insights into AYA healthcare.
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STRONG AYA will work towards the most effective, affordable, and sustainable value-based care for AYA with cancer to maximize their health outcomes, and ambitiously set a standard of excellence in AYA oncological healthcare across Europe.
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Our consortium is an interdisciplinary network, bringing together expertise and excellence in cancer care and research, policy and data science across fourteen organisations in seven European countries.
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