New papers on creating and collecting data

February 27, 2024

New papers on creating and collecting data

Two papers on data management have been published by STRONG-AYA consortium partners. Both articles are open access and available to the public. Their insights will inform the development of our project and other research into healthcare data.

Click on the links below to read the papers in full.

Getting real about synthetic data ethics: Are AI ethics principles a good starting point for synthetic data ethics? Authors: Danielle Shanley, Joshi Hogenboom, Flora Lysen, Leonard Wee, Aiara Lobo Gomes, Andre Dekker, & Darian Meacham
Protocol for the development of a Core Outcome Set (COS) for Adolescents and Young Adults (AYAs) with cancer. Authors: Olga Husson, Silvie H. M. Janssen, Bryce B. Reeve, Samantha C. Sodergren, Christabel K. Cheung, Martin G. McCabe, John M. Salsman, Winette T. A. van der Graaf, & Anne-Sophie Darlington